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Date : 2017-10-24

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An Ordinary Day Kids with Rare Genetic Conditions Karen  ~ An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost 1 in 10 Americans are living with a rare genetic condition The conditions that rule the lives of these families are often overlooked by society but for millions of people it is a matter of foremost priority
An Ordinary Day Kids with Rare Genetic Conditions by  ~ An Ordinary Day Kids with Rare Genetic Conditions  An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost 1 in 10 Americans are living with a rare genetic condition
Book An Ordinary Day  Karen Haberberg ~ An Ordinary Day Kids with Rare Genetic Conditions Poignant powerful life affirming – An Ordinary Day – will connect families with children who have rare genetic disorders to one another and to the world SYNOPSIS Rare genetic diseases are pretty common — 1 out of 10 Americans is affected while 95 do not have an FDA approved drug treatment
An Ordinary Day Kids with Rare Genetic Conditions  ~ An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost 1 in 10 Americans are living with a rare genetic condition
New Photo Book Captures the Struggles and Triumphs of Kids  ~ In  An Ordinary Day Kids with Rare Genetic Conditions acclaimed New York photographer and mom of two Karen Haberberg invites us into the lives of 27 families caring for kids living with 
Book An Ordinary Day  Karen Haberberg ~ These are all tasks that are taken for granted by families and children without these disorders but are immense accomplishments and triumphs for children afflicted with rare genetic conditions The intimate portraits in An Ordinary Day will inspire hope empathy and gratitude in all of us
Children with Rare Genetic Conditions Spotlighted in New Book ~ An Ordinary Day Kids with Rare Genetic Conditions combines these photographs with interviews and text to explore the world of each family With one in ten Americans suffering from a rare genetic condition Haberberg’s journey into their lives is a necessary tool to help connect these families with one another—and the world at large
Photography Book An Ordinary Day Portrays Kids with  ~ Karen Haberberg’s new book “An Ordinary Day” portrays 27 American families living with children that have rare genetic conditions “The people who contacted me really wanted to tell their stories They’re very proactive about their kids” she said
Families in the News  MowatWilson Syndrome Foundation ~ An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost 1 in 10 Americans are living with a rare genetic condition The conditions that rule the lives of these families are often overlooked by society but for millions of people it is a matter of foremost priority